PPI is intended to make clinical research and its results more patient-centered. As a member of a research team, you are involved in the development process of a research project and do not take part in the study itself.
What can patients, those affected and relatives contribute?
1. identification of the research questions
For example, you can:
- co-determine which questions a research project should answer
- help to prioritize research projects
- help to establish contact with patient groups
2. design of the research project
For example, you can:
- participate in the content and organizational design
- help assess the risk-benefit ratio of a project
- contribute to how the burdens of study participation can be reduced
3. implementation of the research project
For example, you can:
- contribute to the creation of information material such as patient information leaflets
- establish contact between patients, patient organizations and researchers and thus mobilize participants for studies
4. analysis and interpretation of the results
For example, you can:
- help analyze and interpret the data
- Recognize differences in the interpretation of data
- help to identify potential research topics for future studies
5. communication of the results
For example, you can:
- help to write the results in understandable language
- support communication to a wider audience
6. assessment of patient participation
For example, you can:
- Measure and assess the impact of participation
- Determine relevant findings for future research projects